The MND Research Collective

The MND Research Collective was launched in 202and is a concept co-designed with around 50 experts from lived experience, medicine, healthcare, and research. 

The MND Research Collective is not a new entity or organisation, but rather the coming together of existing groups, organisations and stakeholders under a shared focus and vision and with a common agenda. The MND ecosystem in Australia sometimes appears disjointed or crowded, with a lot of organisations operating in the MND space. The MND Research Collective was established in part to reduce duplication and increase communication and efficiencies between these organisations. 

From this shared goal and focus The MND Research Collective creates a joint approach to solving complex problems. It aims to encourage and facilitate a collective approach to research that enables better outcomes for people living with MND. 



Considered a rare disease, MND has not received the attention and funding needed to enable researchers and healthcare practitioners to advance their understanding of the disease, develop and provide access to promising treatments, and ensure delivery of equitable best practice standard of care.

The establishment of the MND Research Collective provides an opportunity for a united voice to campaign for change and investment in MND care and research. It provides an opportunity to elevate the voices of those with lived experience of MND, discovery and clinical researchers and allied health professionals. 

The Collective provides a critical mechanism for communication across all of those affected by and working in the MND space. This communication will increase opportunities and efficiencies and reduce duplication. 
 

We are now accepting applications for membership to the MND Research Collective. Membership is free and is open to MND researchers and MND professionals. As a member of the MND Research Collective, you will receive regular email updates. Research and professional members will have access to a mentoring program and a soon to be released MND researcher database. To sign up to be a member of the Collective, please fill in the registration form

If you have lived experience of motor neurone disease and would like to be involved in the MND Research Collective, please sign up to the National MND Lived Experience Network and express your interest in joining the Lived Experience Research Advisory Panel

The MND Collective board has representation from both FightMND and MND Australia, as well from state MND associations, the MND and Me Foundation, MND researchers, clinicians, allied health professionals and the lived experience community. To advise the board are three advisory committees: the Discovery Research Expert Driving Team, the Clinical Care Expert Driving Team and the Lived Experience Research Advisory Panel.  

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