The MND Research Collective

Considered a rare disease, MND has not received the attention and funding needed to enable researchers and healthcare practitioners to advance their understanding of the disease, develop and provide access to promising treatments, and ensure delivery of equitable best practice standard of care.

The establishment of the MND Research Collective provides an opportunity for a united voice to campaign for change and investment in MND care and research. It provides an opportunity to elevate the voices of those with lived experience of MND, discovery and clinical researchers and allied health professionals. 

The Collective provides a critical mechanism for communication across all of those affected by and working in the MND space. This communication will increase opportunities and efficiencies and reduce duplication. 
 

We are now accepting applications for membership to the MND Research Collective. Membership is free and is open to MND researchers and MND professionals. As a member of the MND Research Collective, you will receive regular email updates. Research and professional members will have access to a mentoring program and a soon to be released MND researcher database. To sign up to be a member of the Collective, please fill in the registration form. 

If you have lived experience of motor neurone disease and would like to be involved in the MND Research Collective, please sign up to the National MND Lived Experience Network and express your interest in joining the Lived Experience Research Advisory Panel. 

The MND Collective board has representation from both FightMND and MND Australia, as well from state MND associations, the MND and Me Foundation, MND researchers, clinicians, allied health professionals and the lived experience community. To advise the board are three advisory committees: the Discovery Research Expert Driving Team, the Clinical Care Expert Driving Team and the Lived Experience Research Advisory Panel.