Many people with MND are eager to participate in MND research. To find out more, talk to your neurologist about research opportunities in your area or visit the websites below:
- Clinical Trials: In clinical trials, experimental drugs, medical devices, treatments and therapies are tested for their safety and how well they work. People living with MND can join clinical trials as well research focused on improving health care and wellbeing.
Find out more about clinical trials being conducted in Australia
- The Australian Government Clinical Trial website is a search portal for clinical trials in Australia.
- The International Clinical Trials Registry Platform is the World Health Organisation's search portal for clinical trials.
- ClinicalTrials.gov is the United States National Institutes of Health's (NIH) database of private and public clinical trials in the US and around the world.
- The Sporadic ALS Australia Systems Genomics Consortium (SALSA-SGC) aims to improve understanding of sporadic MND. SALSA –SCG collects clinical data and biological samples from people living with MND across Australia to help with future research.
Find out more about SALSA-SGC
- The MiNDAUS Registry is a secure online database that collects MND data from patients and clinics across Australia. It provides a central platform for people with MND and their carers to store their medical information. You may also choose to make your information available to clinicians and researchers to aid their research efforts.
Find out more about MiNDAUS and how to join
- MND Research Tissue and Brain Banks care for brains and related samples donated by people who have had neurological disorders or issues, including MND and Parkinson’s disease. Brain banks help researchers understand how brain diseases occur. The research aims to improve diagnosis, develop treatments and, hopefully, a cure. A brain or spinal cord tissue donation involves a person giving their brain to be used for medical research after they die. Speaking with your neurologist can help you to learn more about brain or spinal cord tissue donation. It is also important for researchers to compare brains and spinal cords from people who do not have MND. Family members and friends may also consider registering as a donor. Brain donations are organised by state-based brain banks. A list can be found on the Brain Foundation website.