MND Australia

MND registry

The Australian Motor Neurone Disease Registry aims to improve patient care through continuous evaluation of patient management and associated outcomes, and form significant scientific research collaborations with organisations and individuals to better understanding MND.

The Australian MND Registry is a clinical database that provides a means to facilitate the collection and analysis of MND patient data such as:

  • Demographics
  • Site of onset
  • Diagnosis data
  • Treatment type
  • Changes in functional capacity
  • Complications related to disease progression
  • The impact of new treatments and interventions for MND.

Participating in the registry provides an opportunity for people living with MND to actively contribute to research. There are no extra tests, procedures or treatments involved.

More about the Australian MND Registry and how to get involved.