MND Australia

MiNDAUS Patient Registry

MiNDAUS is a partnership of Australian MND researchers, clinicians and organisations, which aims to develop a nationally co-ordinated and patient-centred approach to MND research, care and policy development.

A key component of the partnership is the MiNDAUS Patient Registry. The Registry is a clinical database that collects MND patient data, including:

  • Demographics
  • Diagnosis data
  • Treatment type
  • Changes in functional capacity
  • Complications related to disease progression
  • The impact of new treatments and interventions for MND.

Through collecting and analysing patient data, we can work towards a better understanding of MND, including its causes and pathways to new treatments.

Everyone diagnosed with MND in Australia is encouraged to participate in the Registry. There are no extra tests, procedures or treatments involved.

Please note that the MiNDAUS Patient Registry has replaced the Australian MND Registry.