MND Australia
MND Info Line 1800 777 175. 9am to 4.30pm Monday to Friday.

Newly diagnosed?

It can be very challenging to learn that you or someone close to you has motor neurone disease (MND). An MND diagnosis may take some time to adjust, and to make sense of the news. But with the right help and information, you can learn about the care options and support available to help you live as well as possible with MND.

Being diagnosed with MND often leads to many confusing and confronting emotions. Working through the emotions that come with a diagnosis may not be easy – but there are ways to help reduce any worries you may have, and manage what’s going on.

We’ve developed this information, and the rest of our website, to help share quality information with you about the effects of MND and to help you plan ahead. You can find information about who to talk with, what to read and other forms of support and services available.

One of the best things you can do is talk with someone who knows about MND and ways to deal with it following diagnosis.

Talking with someone helps because it can be hard to know where to start. You can talk with someone who knows about MND by calling the MND Info Line on 1800 777 175 (Monday to Friday 9am to 4.30pm). MND Info Line staff are there to help you in any way they can, including:

  • answering any questions you may have
  • talking about what you’re going through in a supportive way, and
  • providing information about how to best access services and support.

When you call the 1800 number you will be automatically directed to the MND association in your state or territory. MND associations are there to help you and those close to you with advice, finding services and support, accessing equipment and linking with education sessions and support groups.

MND Info Line staff will provide you with information, guidance and links to services based on your location, and what you want and need. There is no charge for calling the MND Info Line. All calls are confidential.

GPs, health professionals and service providers can also call the MND Info Line for information, advice and support.

Learn more about state MND Association services

Reading basic facts about MND is a good place to begin. When you feel ready, you can browse the rest of this website for more information about living day-to-day with MND.

Remember: when reading information about MND, be mindful that the speed at which MND symptoms progress can be different for each person. You may find that some information here is more relevant at certain times than others.

You can also call the MND Info Line on 1800 777 175 (Monday to Friday 9am to 4.30pm).

Learn more about MND research

Some MND associations host information sessions for people recently diagnosed with MND, and their family and friends. Information sessions are held online and/or in person. Sessions cover topics like MND symptom management and how to access support. Sessions are also a chance to learn from and connect with others just diagnosed with MND.

MND associations run support groups and host a range of information and education events throughout the year. Staff on the MND Info Line (1800 777 175) can tell you about upcoming events.

MND associations can also help to put you in touch with people and organisations who will help you manage MND and live as independently as possible, such as:

Call the MND Info Line on 1800 777 175 (Monday to Friday 9am to 4.30pm) to find out more.