There are motor neurone disease clinics or services available across Australia.
The aim of these clinics is to provide a coordinated and multidisciplinary approach to diagnosing and managing MND symptoms and other issues that come with MND. The health professionals involved in these clinics and services are experienced in MND.
The clinics are usually held in outpatient clinics at a hospital, which means the people with MND come into the clinic for review but aren’t admitted to the hospital.
MND Clinics usually comprise of a neurologist and other specialist doctors, nurses and allied health professionals who specialise in MND and provide the opportunity for people with MND to see the team for advice and guidance on a regular basis.
Your visits to your MND clinic and the multidisciplinary team members’ consultations is usually covered by Medicare unless the clinic is privately run. You will need to discuss any out of pocket expenses with the clinic coordinator or your neurologist.
People living with motor neurone disease are likely to need advice about mobility, communication, breathing, nutrition, managing other symptoms and getting community support.
How you manage some of your earlier symptoms can affect how other, later-developing, symptoms can be managed. However, many health professionals may rarely see people with motor neurone disease during the course of their working life. Attending an MND specific clinic or service is therefore something you may like to do.
Studies have shown that the health professionals you consult can give you better care and advice when they are knowledgeable about motor neurone disease. Having a team of professionals involved in your care who know about MND and who can help to coordinate your care has to be a positive thing.
Multidisciplinary care via a MND clinic can provide:
When you arrive at an MND clinic, you and your carer will usually wait in a consultation room and the staff take turns coming in and reviewing your needs.
The staff form a team of varied health professionals who understand MND and who work with you to support your management of the disease. Teams vary from hospital to hospital but may include a:
The team will often hold meetings to make sure that your needs are met and well planned for, meetings which are also known as case conferences.
Case conferences are held on clinic days. The team will discuss their recommendations and treatment on a case by case basis to provide the best possible care and support – care that is timely, organised and tailored to your needs.
Referral to a MND clinic is recommended, where possible, to confirm a diagnosis of MND.
You will need a referral from either from your Neurologist or GP to visit an MND clinic. Once you have a referral, you then contact your local clinic and ask any questions you have and organise an appointment.
Your MND Advisor is also a great source of information about your local MND clinic so don’t hesitate to discuss and questions you may have with them or to contact the MND clinic contacts noted in this web content.
Calvary Health Care MND Service
91–111 Rocky Point Road, Kogarah NSW 2217
Contact: Coordinator Donna Berry
T: (02) 9553 3444 (direct) or (02) 9553 3111
E: calvarymnd@sesiahs.health.nsw.gov.au
Fax: (02) 95881635
Liverpool Hospital MND Clinic
Corner Elizabeth & Goulburn Streets, Liverpool NSW 2170
Contact via reception (02) 8738 3000 & ask for MND clinic
Fax: (02) 8738 4102
Macquarie Neurology Clinic
Suite 204, level 2, 2 Technology Place
Macquarie University, NSW, 2109
Contact: CNC Kristina Barnes
T: (02) 9812 3742 (Kristina)
E: Kristina.barnes@muh.org.au
Forefront MND/FTD Clinic
Brain and Mind Centre
Level 4/94 Mallett Street, Camperdown, NSW 2050
Contact: Co-ordinator Hannah Timmins
T: (02) 9351-0976 (Monday-Friday)
F: (02) 9114-4254
E: bmc.mndpatients@sydney.edu.au
MND Clinical Nurse Consultant: Margie Zoing
T: 0418 617 681 or (02) 9114-4265
E: Margaret.zoing@sydney.edu.au
Murwillumbah MND Clinic
Murwillumbah Hospital
8-10 Ewing St, Murwillambah, NSW 2484
T: (02) 6672 0274
F: (02) 66 720 114
Hunter New England MND Multidisciplinary Clinic
John Hunter Hospital
Lookout Road, New Lambton, NSW 2305
Contact: Coordinator Cathy Bros
T: 0408 976 574
E: catherine.bros@health.nsw.gov.au
Illawarra Multidisciplinary MND Service
Port Kembla Hospital
89-91 Cowper Street
Warrawong NSW 2502
Contact: Ellen Crookes
T: 02 4223 8216
E: Ellen.crookes@health.nsw.gov.au
Fax: 02 4223 8231
ALS/MND Multidisciplinary Clinic
Brain and Nerve Research Center, Concord Hospital
Building 20, Level 1, Hospital Rd, Concord, NSW 2139
Contact: Christina Orina
T: 02 9767 7233
E: christina.orina@health.nsw.gov.au
Referrals addressed to Prof Steve Vucic or Dr Veena Raykar
Fiona Stanley Hospital MND Clinic
Robin Warren Drive, Murdoch WA 6150
T: (08) 6152 0618
Perron Institute MND Clinic
8 Verdun St, Nedlands, WA 6009
Contact: Manager Clinical Services Sue Walters
T: (08) 6457 0200
E: clinic@perron.uwa.edu.au
Midlands MND Clinic
St John of God Hospital
1 Clayton St, Midland, WA 6056
Princess Alexandra Hospital MND Clinic
199 Ipswich Rd, Woolloongabba QLD 4102
Contact: Coordinator Lois Quick
T: (07) 3156 9419
E: Lois.quick@health.qld.gov.au
Prince Charles Hospital Specialist Outpatient Clinics
Rode Road, Chermside Queensland 4032
Contact: Coordinator Tara Hormann
T: (07) 3139 4207
E: CNC.MND@health.qld.gov.au
Royal Brisbane and Women’s Hospital
Neurology Outpatient Department
Butterfield St, Herston, QLD 4029
Contact: Coordinator Tara Hormann
T: (07) 3646 3111
E: CNC.MND@health.qld.gov.au
Fax: 07 3646 2632
The Sunshine Coast University Hospital MND Clinic
6 Doherty Street Birtinya QLD 4575
Contact: Coordinator Dawn Harwood
T: (07) 5202 7894
Gold Coast University Hospital
Neurology Service, Level 5, A Block1,
Hospital Boulevard, Southport 4215
ACT Multidisciplinary MND Clinic
University of Canberra Hospital
20 Guraguma Street, Bruce ACT 2617
Contact: Coordinator Megan Sullivan
T: (02) 5124 0232
E: megan.sullivan@act.gov.au or uchbrindabellarehabilitation@act.gov.au
Motor Neurone Disease (MND) Clinic
McKellar Centre
45 - 95 Ballarat Rd, North Geelong VIC 3215
Contact: Jeanette Wallish
T: (03) 4215 7009
F: (03) 4215 6486
E: Jeanette.wallish@barwonhealth.org.au
State-wide Progressive Neurological Disease Clinic
Calvary Health Care Bethlehem
152 Como Parade West, Parkdale Vic 3195
T: (03) 9595 3355
E: BET-AdminSPNDS@calvarycare.org.au
Contact: Call and ask to speak with someone re MND Clinic
Northern Health Progressive Neurological Disease Clinic
Bundoora Extended Care Centre
1231 Plenty Road Bundoora VIC 3083
South Australian MND Multidisciplinary Clinic
Flinders Medical Centre, Flinders Drive, Bedford Park SA 5042
Contact: Coordinator Leanne Davis
T: (08) 8204 5005
Alternative T: (80) 8204 4187
E: Leanne.davis2@sa.gov.au
Launceston General Hospital MND Clinic
Charles Street, Launceston TAS 7250
Contact: Nurse Practitioner Sharon Wendon (Neuromuscular Degenerative Diseases LGH)
E: Sharon.wendon@ths.tas.gov.au
T: 03 67776317