MND Australia
MND Info Line 1800 777 175. 9am to 4.30pm Monday to Friday.

MND information sessions

If you’d like to learn about what helps after a diagnosis of motor neurone disease (MND), how to live with MND and the latest in MND research, then MND information sessions are a great way to find more information in a friendly environment.

There are a variety of MND information events held throughout the year. Events deal with specific topics and are held in many different locations around Australia, organised by individual MND associations, for people with MND, their family and friends.

There is usually no charge to attend. Registration is important though and can be done with the host association prior to the event.

Events can feature slightly different formats and approaches, but often are:

  • presented face to face with an audience
  • held virtually with zoom or similar video platforms
  • recorded for viewing after the event

Topics include things like:

  • an overview of MND
  • how the MND Associations can help with accessing support and services
  • connecting with others living with MND
  • managing MND symptoms

To find out what MND information events are planned in your state or territory, or to enquire what recorded sessions are available to view speak with your MND advisor or call the MND Info Line on 1800 777 175. Monday to Friday 9am to 4.30pm.

These sessions are for people who have been diagnosed with motor neurone disease, their family and friends. The sessions are interactive, based on the latest evidence about MND and provide information about services provided by your MND Association.

These services can include things like help with equipment, information resources, ongoing support and linking you with the NDIS and My Aged Care. These events are an opportunity to have some of your questions answered and share experiences in a welcoming and supportive environment.

To learn more about MND education sessions available in your state contact your local MND association on 1800 777 175.

Ask the Expert forums are organised by some of the state MND associations usually run over a few hours for people with MND, their family and friends.

During sessions, experts in the field give presentations on topics such as clinical trials, exploring treatments and the genetics of MND, palliative care, symptom management and medications, trends in prevalence of the disease and related topics.

These relaxed and friendly events provide an opportunity to learn more about MND, ask questions and to meet others living with MND and of course, your local MND team.

These sessions are usually live steamed or recorded and therefore available no matter where you live in Australia.

To learn more about 'Ask the Expert' sessions available in your state contact your local MND association on 1800 777 175.

MND Australia holds an annual interactive community research meeting providing an opportunity to inform people living with MND and their families of research advances and the latest developments in MND research. The 2019 meeting was held in conjunction with the International ALS/MND Connect meeting in Perth and the 2020 meeting was not held due to the COVID-19 situation. 

Some meetings feature experts from across the world, as well as leading researchers at institutes and centres working on MND research projects across Australia. The meeting is held at various locations around Australia and is live streamed for remote participants.

The recording of the past meetings are available to watch on the MND Australia YouTube channel.

To learn more about these sessions contact MND Research Australia (MNDRA) on 02 8287 4989 or via email [email protected]

State of Play is a Webinar Series organised by MND Research Australia. The webinars began in 2020 and are open to all who would like to learn more about MND research within Australia. The free sessions are live events which you can join via the MND Australia Facebook page.

The webinars are run at various times throughout the year. To learn more about and register for upcoming webinars subscribe to the MND Australia newsletter via the link below to receive the monthly MND Australia e-newsletter or keep an eye on the MND Australia Facebook page.

If you can’t make the live event, the recordings are available here to watch at any time.  

To learn more about these sessions contact MND Research Australia (MNDRA) on 02 8287 4989 or via email [email protected]

Living well with MND and similar programs organised by the state MND Associations are designed for people with MND and their carers.

The programs focus on things like:

  • eating well
  • improving your home environment
  • managing sleep, breathing and breathlessness, and
  • using equipment

Participants have the opportunity to share knowledge and discuss topics relevant to living with MND while learning about a range of strategies to live well with MND. The events are a great opportunity to learn about MND from a range of health professionals with special knowledge and understanding of MND, and to meet others living with MND.

To learn more about MND information sessions available in your state, territory or online contact your local MND association on 1800 777 175.