Media Statement

Vale Neale Daniher

We are deeply saddened to learn of the passing of Neale Daniher AO.

For more than a decade, Neale has been an extraordinary champion for Australians living with motor neurone disease (MND). Since his diagnosis in 2013, he dedicated his life to raising awareness, building understanding, and investing in research that will one day lead us to a cure.

Neale’s journey with MND was extraordinary. While many people diagnosed with MND face an average life expectancy of just 27 months, Neale fought the disease for 13 years with remarkable courage, resilience and determination. His strength gave hope to so many Australians living with MND and showed the nation what is possible through perseverance, advocacy and community support.

Neale’s tireless advocacy gave a voice to more than 2,700 Australians currently living with MND and their families. He brought MND out of the shadows and into the national conversation.

Beyond his extraordinary leadership in the MND community, Neale’s recognition as 2025 Australian of the Year and his appointment as an Officer of the Order of Australia in 2021 reflect the depth of his impact on our nation.

On behalf of MND Australia, we extend our heartfelt condolences to Neale’s family, friends, and the entire FightMND community. His passing is a profound loss, not only for those who knew him personally, but for every Australian whose life has been touched by MND.

In honour of Neale’s legacy, MND Australia will continue to raise awareness for the MND community and advocate for better care, better support services, and continued investment into the vital research needed to find effective treatments and ultimately, a cure.

Vale Neale Daniher AO. He was, and will remain, a true hero in the fight against MND.