Australian MND Community Survey

Published: February 2025

MND Australia and FightMND are calling on all Australians affected by MND to share their lived experience and insights, via an important national survey.

The online survey is open to:

• people living with MND
• current and former carers
• gene carriers

The survey aims to:

• understand the quality of life of people impacted by MND
• understand the experience of engaging with, and navigating, treatment, care, and support
• explore participation in research, and preferences for future research priorities
• provide opportunity to share suggestions for future advocacy priorities.

The survey results will produce a report that will be used by FightMND and MND Australia, as well as the broader MND community, including State MND Associations, researchers, healthcare professionals, and other not-for-profit organisations.

The report will ensure that the voices of Australians with lived experience of MND are represented in future care and research investments, as well as advocacy work.

The survey closes at 5pm on 7 March 2025.