There are support groups for people living with MND across Australia, their families and carers. Some of these are in-person, while others are offered online. There are also groups that cater specifically for carers, and for people who do not have MND, but carry MND-related gene changes.
MND support groups offer a safe and friendly place to meet and share experiences with others in a similar situation. Groups usually meet on a regular basis.
Check out the links below to find a support group that suits you.
National (online only)
Male Carers Support Group (hosted by MND Victoria). This monthly online session offers practical advice and reassurance to assist male current carers with the complex responsibilities of caregiving.
NSW and ACT
MND NSW Support Groups MND NSW offer a range of in person and online support groups and information sessions for people living with MND, and carers.
Queensland
MND QLD Support Groups MND Queensland offer free support groups for people living with MND, their families and carers. In person sessions are offered across the state, including regional areas. There are also online sessions and a Facebook group.
MND and Me Support Groups MND and Me host regular in-person support groups in a variety of locations throughout Queensland. These support groups provide opportunity for people living with MND to meet in an informal environment to chat, catch up and learn from each other.
South Australia
MND SA ‘You, Me and MND’ Sessions In-person support groups held in various locations provide a relaxed environment for people to come together. MND SA also offer online information sessions for people recently diagnosed with MND.
Tasmania
MND TAS Support for Carers A variety of options including lunches and online sessions.
Victoria
MND VIC Support Groups MND Victoria offers facilitated peer support groups for people living with MND and carers, as well as information sessions and carers lunches. A range of in person and online sessions are available.
Western Australia
MND WA Support Groups enable people living with MND and their families to feel connected, guided and supported through their journey with MND.
Facebook groups
These groups are run by members of the community and are not affiliated with MND Australia or state MND organisations.
Australia MND group A private group for people living with MND in Australia, and their family members.
Let's Talk MND A public group and podcast hosted by MND Australia Ambassador Jane Simpson, featuring stories of people with lived experience of MND, as well as MND researchers and health professionals.
MND Genies A private group for people, living in Australia or New Zealand, who have a MND-related genetic mutation, but do not have any MND symptoms.
C9orf72 support group A private group for C9orf72 carriers, caregivers, friends/family, and anyone else who wants to know more about this gene mutation (international).
MND Carers Australia A private group to support the primary carer of someone living with MND.