We invite professionals working within Australia to connect with members of the National MND Lived Experience Network (LEN) for a specific engagement activity, relating to either:
- care and support
- raising awareness of MND
- developing or reviewing information material about MND
- advocacy/ policy
- research
Submitting a request
Before submitting your request:
- Please consider your engagement plan and how you will support meaningful inclusion of people with lived experience of MND in your activity. For practical tips, please refer to our Engagement Checklist.
- To support consistent, equitable, and respectful practices on recognising, reimbursing, and paying people with lived experience of MND who participate in engagement activities, please refer to our Guide to Paid Participation.
- Please refer to MND Australia's Policy for Engaging LEN Members.
To submit your request:
Complete the online Request Form below.
All requests will be directed to the LEN Program Manager and reviewed by the LEN Approval Panel, on the third Wednesday of each month. Please allow a 4-week lead time, allowing for Approval Panel decision, promotion of your activity, and managing expressions of interest.
Please note: we cannot guarantee that LEN members will express interest in your activity.
For any questions, please email the LEN Program Manager via: julie.labra@mndaustralia.org.au
Request Form
The information entered on this form will ensure that we can match LEN members to your activity requirements and provide adequate information for people to make an informed choice about participating.