Professionals are welcome to submit a request to connect with members of the National MND Lived Experience Network (LEN), for a specific activity, relating to either:
- care and support
- raising awareness of MND
- developing or reviewing information material about MND
- advocacy/policy
- research
Submitting a request
To submit a request please:
- Read our Policy for Engaging with Members of the National MND Lived Experience Network
- Consider your engagement plan and how you will support meaningful inclusion of people with lived experience of MND in your activity. For practical tips, please refer to our Checklist
- Complete the online request form below. The information entered on this form will ensure that we can match LEN members to your activity requirements and provide adequate information to make an informed choice about participating.
Requests will be reviewed by our LEN Approval Panel, on the third Wednesday of each month.
Please allow a 4-6 week lead time, allowing for Approval Panel decision, promotion of your activity, and managing expressions of interest (please note: we cannot guarantee that LEN members will express interest in your activity).