Multidisciplinary team members communicate with each other about your care and help you get care from other members of the team when you need it. Professionals providing multidisciplinary care can be from the same organisation, a range of organisations or from private practice. They can work in the community, hospital, clinic, residential and other care settings. Each discipline-specific team member enriches the knowledge-base of the team as a whole and, over time, the multidisciplinary team composition can change to reflect changes in the person’s needs.3
Over the course of your disease progression you may find you need to talk with various health professionals and specialists to support you, and it is ideal to have a coordinated and integrated multidisciplinary approach to your care.
Importantly, multidisciplinary care can provide you with a direct link to one person (key worker), who is a member of the team, usually referred to as a clinical nurse coordinator, care coordinator, support coordinator or team coordinator. The key worker can be your GP, your MND Association Advisor or any member of your multidisciplinary care team.
Your key worker:
Who your key worker is depends on:
Community aged care workers provide general household assistance, emotional support, care and companionship to people in their homes.
Dietitians provide dietary and nutritional advice including advice about modified meals, hydration and timely nutritional support.
The general practitioner (GP) is a doctor providing general medical care. GPs are usually your first point of medical contact. The GP liaises with the neurologist and other health and community care providers.
MND Association Advisors help people with MND connect to the services they need. MND Advisors also offer ongoing information to families and service providers as questions arise or needs change. The neurologist is a doctor who specialises in disorders of the nervous system.
The neurologist coordinates the tests you need for diagnosis and monitors disease progression and management of your symptoms.
An occupational therapist (OT) helps to maintain mobility, function and independence. OTs provide advice about home modification, different ways of performing tasks and specialised equipment.
An orthotist can assist with the advice and timely provision of artificial or mechanical aids, such as braces to prevent or assist movement of weak or injured joints or muscles to help prolong function of the patients. It is recommended that the orthotist be visited early on to provide prompt access to orthotics.
The palliative care team specialises in interventions that can improve quality of life for people with life limiting conditions. Palliative care services may also provide emotional support for people living with MND and can assist you to plan your future care.
A physiotherapist helps you maintain physical activity and mobility. Physiotherapists can also show your family or carer how to safely help you move from one position to another, for example, moving from a chair to a bed. The respiratory specialist is a doctor who specialises in disorders of the lungs and breathing.
The respiratory specialist provides information and advice about breathing and motor neurone disease including timely access to non-invasive ventilation.
The role of the Registered nurse, MND nurse, clinical nurse consultant or clinical nurse specialist is varied and can include ongoing care and care coordination, often for people in their own homes. Specialised MND nurses usually work in MND clinics and have particular expertise in motor neurone disease symptom management.
A social worker, psychologist or accredited counsellor provides counselling on the psychological and emotional aspects of living with MND. In addition, a social worker can provide information on community services that may assist you with accommodation, legal, financial and other issues.
A speech pathologist helps in the management of communication and swallowing. They can advise about communication aids and devices, swallowing techniques and food consistency.
Support coordinators assist people who are diagnosed with MND when aged 64 or younger who have an NDIS plan that includes support coordination. The coordinators assist people to enact their NDIS plan and find suitable local services.